(these pics are anywhere from 4mos old to 7mos old withe her parents...)
Now five years later, Joanne is a member of a Palliative care taskforce in Pennsylvania that is fighting for children to have the right to die comfortably and at home. Today in the Philadelphia Inquirer the task force was front page news:
Getting hospice took over six weeks. "I am not sure every parent could do what we did", Joanne said. "But it was the right choice for Katy. The last thing she saw was her family and her home."
People judged Jo and Bill for their choice, some had the audacity to say that they killed their child. They continue with counseling and do all they can to help Miss Sophia grow. She is mildly autistic with persistant developmental delays but a happy, loving child.
Why this post? To make aware others of the need for children to be allowed to die in peace and without pain in the surrounding of comfort.